“We all need a purpose to get up in the morning.” ~ Geri, diagnosed with Alzheimer’s.  “I want to make it matter!” ~ Teresa, diagnosed with FTD

People living with dementia, their caring family members and friends are shaping a different future by sharing their “lived experience” to activate change.  CaringKind is propelling this effort through our Influencer Network.

People with lived experience are those directly affected by health, social and other issues.  This gives them insights, knowledge and perspectives that can inform and improve systems, research, policies, programs and treatments.  For over 25 years, people living with dementia have been coming forward to change stigma and services by speaking, writing, and advocating in a variety of ways, but there is still more work to do!  We need more ‘influencers’ who want their experiences to matter.

CaringKind’s Influencer Network is a growing group of people living with various forms of dementia, caring family members, friends and supporters.  Through educational workshops and information sharing we help connect people to opportunities to use their lived experiences.  Influencers self-select roles, opportunities and activities that align with their own interests and priorities.  There are lots of ways to share your experiences… quietly and privately or loudly and publicly… and we help you to identify what a good fit looks like for you.

If you are interested in learning more, join our private mailing list below.  The Influencer Network has a virtual meeting every 2-3 months, and we send out opportunities to engage each month.  Here are some examples of ways to be involved:

• Complete a survey
• Participate in an interview or focus group
• Share your stories through a video testimonial or creative production
• Send a letter to a government official
• Participate in a research study
• Test a new product
• And many more…